Registry coordinator

Lindsay Murphy

In 2018, Lindsay Murphy joined the Patient Registries Team at the John Walton Muscular Dystrophy Research Centre, Newcastle University, UK. She coordinates both the UK SMA Patient Registry and the Global FKRP Registry. She is the first point of contact for the UK SMA Patient Registry and welcomes questions and comments from patients and their families and encourages applications for use of the registry by patient, researcher, academic or industry stakeholders working to improve the knowledge, understanding, care and treatment of SMA.